An update, as it has been awhile since last post.
Still having same symptoms: fatigue, lethargic, feels like not getting enough oxygen, dizziness, weak, nausea, loss of coordination, sleeps a lot during the day, loss of appetite (though, she is on an eating ‘schedule’). We have been having a hot summer, daily temps average 90 to 100 F, which also sucks the energy right out of her, so she what practices she does are done in the later evening.
These symptoms obviously not only warrant blood work-ups to check for anemia/low serum ferritin, but also to check thyroid function, adrenal fatigue, mono-nucleosis etc. From my own experience, Doctors can be a big problem in treating this, even Sports Medicine doctors.
Every Parent/athlete, needs to become aware and have the knowledge to be able to Advocate for their child or themselve
Since going to the doctor and getting the blood labs a month ago we have played ‘the doctor game’.
‘K’s regular doctor went on vacation the next week.
I had asked for a referral to a local Sports Medicine doctor who had a good reputation to deal with this, as the current doctor admitted her ‘training’ was that if a persons Hemoglobin was ‘normal’ and the serum ferritin fell between 12-160 (for a female) that a 17 (or 21 in 2011) was in the ‘normal’ range.
In between doctors, I contacted a local Hematologist by email, in hopes that he might actually reply… to my happy amazement he replied the same day and we had many exchanges over the next week or so. I also emailed him ‘K’s blood work from 2011, 2012 and the most recent, 2014. I did not have blood work done in 2013, as she no longer ran cross country then and at the time, I understood iron deficiency to mostly affect distance runners.
He told me that “NO”, ‘K’s serum ferritin level was NOT normal, and that it needed to be ABOVE 50, and that with her serious symptoms, there could be other issues, and that she was a candidate for IV iron.
Continuing with the ‘doctor game’ I finally was able to get ‘K’ in to see the Sports Med. Dr. 2 weeks ago…up to that time, I was continuing ‘K’s diet addition of liver, oysters, iron supplements and lots of orange juice.
At the Dr. visit, I explained the situation, that this was something ‘K’ went through in 2011 and was fixed with iron supplements and diet additions and that she had all the classic symptoms of anemia: fatigue, lethargic, nausea, feeling like not getting enough O2, dizziness, loss of coordination, lack of appetite etc.
I also explained that I had been exchanging emails with a local Hematologist and what he had said.
I also added that this could be a thyroid issue, mono-nucleosis, or other health issues that I felt she needed other blood labs ordered.
This Dr. did not listen to anything I said. He told me, “yes, this could be multiple things, maybe even 5, but I don’t think so” he kept going on about how even though the ‘evidence’ and ‘symptoms’ supported my concerns and did not point to his, that he still felt that ‘K’ was suffering from low Glycogen reserves…
I was in complete disbelief at this guy… he refused to do anything other than refer her to a Dietitian…… he then said “I have had a couple girls come in that I recommended the same to, and I have not seen them since, so it must have worked”…
I emailed the Hematologist and told him what happened. He replied that the Dr. is not a Hematologist and ‘doesn’t know the literature’ … a nice way to say he didn’t know what he was talking about when referring to the low ferritin. He also said she needed more blood labs.
The same day I contacted the referred dietician, as I thought it wouldn’t hurt… after answering her questions and also sending her the copies of blood labs I had, she told me that my daughter needed a bunch more. She said it was useless to even talk until the results of the labs came back and other issues looked at.
She said, first of all, the low ferritin levels need to be addressed, as that was a known issue.
She asked if I could go back to my daughters ‘regular’ doctor, and ask for more blood labs and to add some that she would like specifically.
She emailed me a copy of the labs she wanted done.
Last Thursday was able to see ‘K’s regular Dr. She ordered up a bunch of labs, for thyroid, mono-nucleoses, adrenal fatigue, etc. including those from the dietitian. She also has referred ‘K’ to the Hematologist.
Should hear back on all the labs by Tuesday.
During this time, I have reduced workouts in both number per week and work done in each. One or sometimes even 2 days a week she just doesn’t feel good at all, so just an extra rest day.
She is just taking it easy and enjoying track this summer, no expectations. The couple of meets she has gone to she has gotten to see her friends and the meets are treated like ‘mini’ vacations, working in other activities into the travel.